Researches from Germany conducted a study to evaluate the significance of home care patients suffering from advanced cancer. Results were published in Med Klin, 15;95(3): 136-42.
Analysis of the study was derived from interviews with relatives of patients with terminal cancer diseases. They had participated in the home care of 50 consecutively treated patients 2 years previously.
The value of home care was evaluated on the basis of the personal experience of those concerned. Data showed that the holistic concept of palliative home care could be implemented by a specialized team at a high quality level.
Under the favorable conditions of the familiar surroundings, an atmosphere of trust developed as a result of the cooperation with the family members, people close to the patients and with family doctors. It contributed to a relatively high quality of life and to alleviate the emotional stress. Most of those involved were able to accept the hand of fate. On this basis, the terminal phase could be satisfactorily arranged and preparations made for a good quality of death.
During the home care, appreciation of the value of the family increased. The intensified family relations were mostly sustained after the patient’s death. The results document the great personal importance of home care for patients, their caretakers and families. The positive experience and the awareness of having contributed substantially to coping with the life crisis made it easier for the bereaved to grieve and to rearrange their life. Stepwise discriminant analysis was performed using admission, discharge, and combined variables. In our final model of the predictors of discharge disposition, the use of admission functional variables, age, and sex correctly classified 100% of the NH group and 91% of the other group, with IADL, ADL, and mobility defining the function that discriminated the groups.
In conclusion, other studies have been conducted on predictors of bereavement outcomes in family caregivers of persons who have died of cancer. The literature has been divided into common themes of predictors: characteristics of the deceased person, characteristics of the bereaved person, comparisons of bereaved and non-bereaved persons, well-being of the bereaved person prior to the death, prior interpersonal relationships, characteristics of the illness, characteristics of the caregiving experience, and characteristics of terminal care.
A number of recurring patterns point the way to identifying persons who may be at increased risk for poor adjustment during bereavement. It is apparent that men and women express their grief somewhat differently. Whether men or women are at greater risk for poor adjustment, however, remains to be determined.
There is some empirical evidence to suggest that lower socioeconomic status and linguistic barriers interfere with adjustment during bereavement. There is a dearth of culturally relevant services to help palliative-care patients and their family members make the required adjustments. The literature makes apparent the need for open awareness of the impending death and for careful and thoughtful planning for where and how the death ought to occur.
The regular and frequent presence of professional caregivers contributes to family caregivers’ satisfaction with care. Discrepant findings point to the need to explore the issues that underline them. Older bereaved caregivers appear to have some advantages over younger ones, but this finding is not universally found in the results of these studies. Methodological problems include small sample sizes and large variations in the particular bereavement outcomes studied.
Jack Haddad, MD, MBA Portfolio Manager MD Capital Management
Affiliated Hospitals Sutter-Roseville Medical Center, Roseville, CA San Francisco General Hospital, San Francisco, CA San Jose Orthopedic Medical Group, San Jose, CA Highland Hospital, Oakland, CA
Dr. Jack Haddad, MD, MBA is the founder and owner of King of Home Care, an independently owned non-medical In-home care agency. In addition to his compassion and dedication to the home care industry, Dr. Haddad’s expertise and knowledge in hospice care is evident by the clinical research trials that he has conducted over the years.
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